In collaboration with the Brain Injury Association of America, the New York University School of Medicine is conducting a survey to learn about how families of individuals with brain injury experience positive outcomes as a result of being caregivers. The study is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), under the Switzer Research. Fellowships Program Grant. and approved by the NYU School of Medicine Institutional Review Board (IRB Protocol s19-01400).
The purpose of this research study is to develop a questionnaire to measure positive coping (“posttraumatic growth”) in family caregivers of individuals living with an acquired brain injury (ABI).
Although most caregiving studies focus on the strain experienced by the caregiving family of an individual with an ABI, the focus on positive outcomes that may result from this experience could be quite important and potentially help individuals with an ABI and their families improve their quality of life and reduce the psychosocial burden of a brain injury.
You might consider taking part in this research study if you are: 1) a family caregiver of an individual with an acquired brain injury and have been looking after the person with ABI for at least one year, and 2) you are between 22 to 75 years old, and 3) do not have a diagnosis of a brain injury. Your participation is voluntary which means you can choose whether or not you want to take part in this study.
This research is being conducted at New York University School of Medicine (NYUSOM) with Dr. Sonya Kim as Principal Investigator and is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) under the Switzer Research Fellowships Program Grant.
Participation involves completion of one questionnaire; it should only take less than 20 minutes, and your responses are completely anonymous; that is, no personally identifiable information will be collected and none of your responses can be linked to you nor your family member with an ABI. Completing the survey is an indication that you have consented to be in the study.
Please click here, if you are interested in participating in the study.